Category Archives: Blog

“Depression” isn’t a Dirty Word…

Hi, most of you know that I use a wheelchair due to Cerebral Palsy but what a lot of you don’t know about me is that I also have Clinical Depression which means that I have days where I feel very sad,  tired and confused even when things are going really well for me. I wanted to talk about it because I’m sure there’s other SUFU members who have Depression too or know somebody who does, and I wanted to let people know you’re not…

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You can Donate to SUFU While You Shop, with the New “Amazon Smile” :)

Hi Everybody, A couple of weeks ago, Amazon.com sent me an email about a new way you can donate to the charity of your choice and I wanted to share it with you! Amazon.com is a website where you can shop for things you want or need online.  I bet a lot of us shop at Amazon already, so it’s a neat way to give back (you can even give to SUFU.) If you shop on Amazon using this link: www.smile.amazon.com a portion of the…

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“What is it like having a disability?”

Hi Everybody, I was wondering… What would you want to say to someone who asked you, “Tell me what it’s like to have a disability.” I’d want to say, “Most of the time, it’s not that big of a deal.  Sometimes, it’s a pain in the butt and I get really angry.  It hurts when people think that I can’t do things that I know I can do.  But having a disability is a part of who I am, and I like who I am.”…

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SUFU’s Annual Appeal is Here and Here’s How YOU Can Help!

Hi Everybody, We do a lot of interesting and cool things here at SUFU!  To make sure that we have money every year for things like our Annual Conference, Chapter Meetings, Roundups, and lots of other stuff, every year, SUFU raises funds by doing something called an Annual Appeal.   Here are More Ways that the Annual Appeal is So Important to SUFU… SUFU members, just like you, are making a difference in politics: For the first time, since SUFU started in 1993, The SUFU Board…

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SUFU Members: Enjoy the Outdoors by Volunteering at a Land Trust…

Hi Everybody, SUFU has a great opportunity for SUFU members to get involved with the land trust community.  You might be wondering, “what is a land trust?”  I wouldn’t blame you because I didn’t know the answer until a couple of months ago. A land trust is an organization that helps conserve and protect land. This land can be a farm, or specific pieces of land where people like you and me can go and just enjoy nature or ride a bike.  In most cases…

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Incoming SUFU Board Chairperson, Tucker Conley, Wrote an Excellent Letter to the Editor!

Hi Everybody,   Recently, the federal government published a report that said that the Maine Department of Health and Human Services failed to investigate correctly, over 2,600 cases of abuse, neglect, and other bad things, of people with disabilities!  Here are a couple newspaper articles about it, for you to get more information…   (Bangor Daily) http://bangordailynews.com/2017/08/10/mainefocus/federal-audit-dhhs-failed-to-investigate-deaths-suspected-abuse-of-disabled-adults/ (Portland Press Herald) http://www.pressherald.com/2017/08/10/federal-audit-finds-maine-failed-to-investigate-deaths-of-developmentally-disabled-patients/   Tucker Conley, SUFU’s incoming  Board Chairperson was really upset about this and wrote the following excellent letter to several Maine newspapers…   My…

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SUFU Members Rock! :)

Hi Everybody, For this blog, I just really wanted to say, “thank you!”  I learn something new in my job all the time.  The biggest thing is that watching you all advocate for your rights to lead better lives, gives me strength on days when I’m not sure I have it in me to advocate for myself. When I read testimony that so many members wrote, in favor of SUFU’s transportation bill, “LD 464, An Act to Utilize Technology to Facilitate Transportation for People with…

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A Transportation Bill that the SUFU Board Wrote is Going to be Heard by the Maine Legislature! And They Want to Hear from YOU!

Hi Everybody, Something Very Exciting is Happening!   On Friday, May 5, at 9 AM, in Augusta, a bill that the SUFU Board wrote based on what our membership told us they need to improve transportation services for people with disabilities in Maine (which would also include SUFU Members), will be discussed by the Health and Human Services Committee at the Maine Legislature!  The Legislature helps make laws for the people of Maine. The bill (which is called LD 464) creates something called an “app,” that can be put…

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Is SUFU What You Would Like It To Be?

Hi Everybody, We have some exciting things happening at SUFU!  The Sports Chapter is helping so many members stay healthy and have fun, all over the state.  Our new Video Chapter is showing people how to make videos for television.  Local chapters are doing more in their communities than ever before.  We are also working on different ways to attract more people to want to join SUFU and have fun with us! I know that I often send out surveys that have questions that we…

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Happy New Year SUFU!

Tyler Ingalls asked on Facebook, “what goals did SUFU Members have for 2017?” I’m making a promise to myself in the new year:  2017 is going to be the year that Avery truly feels comfortable in his own skin. What I mean is, I’m going to make 2017 the year that I really work on making myself a healthier and happier person.  Now what I’m actually going to do about it this year, I’m not completely sure, yet. I do know that we all owe…

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